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Last Update: Friday, August 6, 2021 At: 2:26:41
(Total Listings: 41) |
Swan Uk
SWAN UK is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed conditions. The support group Syndromes Without a Name (SWAN) was formed in 1999 by the grandmother of a child with severe developmental delays, but no diagnosis for her condition. Over the following decade SWAN provided support and information to numerous families and saw its membership rise to 1300 members. Close links were formed with a number of health and social care professionals in the UK and with similar support groups abroad.
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Tourette Syndrome
What are the various approaches to, treating tics and tourette syndrome also known as Tourette's Disorder, is a fairly common childhood onset condition that may be associated with features of many other...
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Tourettes Action
Tourettes Action is the UKs leading support and research charity for people with Tourette Syndrome (TS) and their families. The organization focuses on people with TS to receive the practical support and social acceptance they need to help them live their lives to the full. Tourettes Action deals with all forms of TS including the most challenging. Organizations patrons are Daniel Katz MBE, Sir Jonathan Miller CBE, Michael Nyman CBE and Dr Oliver Sacks CBE.
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Surgical-Tutor
This site contains educational material aimed at those preparing for undergraduate and postgraduate surgical examinations. It includes clinical tutorials, a journal club, multiple choice questions, revision notes, slide library, discussion group and more.
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Stuttering Foundation Of America
The organization Fraser founded became todays Stuttering Foundation of America. Its goal is to provide the best and most up-to-date information and help available for the prevention of stuttering in young children and the most effective treatment available for teenagers and adults. The Stuttering Foundation of America is a tax-exempt organization and is classified as a private operating foundation.
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Spirxpert
Welcome to our Website-Become an expert inspirometory clinical obstructive syndromes in padiatrics high extrathoracic disorder and central intrathoracic.
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The Social Care Institute For Excellence (Scie)
The Social Care Institute for Excellence (SCIE) improves the lives of people who use care services by sharing knowledge about what works. The institute is an independent charity working with adults, families and children's social care and social work services across the UK. The organization also works closely with related services such as health care and housing. The organization in collaboration with people who use services, their carers, social care providers, professionals, commissioners, policymakers, researchers and colleagues in related areas such as healthcare and housing,
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Sudden Arrhythmia Death Syndromes (Sads)
The Sudden Arrhythmia Death Syndromes (SADS) Foundation, a nonprofit charitable organization, was established on December 12, 1991 by Dr. Vincent and several dedicated colleagues and LQTS family members, for the purpose of helping to prevent sudden and unexpected cardiac death in children and in young adults. The SADS Foundation is dedicated to informing the general public (and families, medical professionals), about the effects of untreatedundiagnosed cardiac arrhythmias and the methods by which death can be prevented. Initiatives include sponsoring public awareness meetings in local communities, providing educational videos on LQTS, and establishing media relationships to promote publicity about these "silent killers", through magazine and newspaper articles and TV & radio shows.
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Rett UK
Rhett UK is a charity in Britain that provide support to families affected by the syndrome Rhett. It is a severe neurological disorder that is life long. The only charity to support patients in the United Kingdom with Rhett, the foundation was established in 1985 by Yvonne Milne at her kitchen table. Since then the charity has become a premier platform for families around the country affected by Rhett to receive informative resources regarding the syndrome, through its national helpline, email support and Rhett speciaLISTs clinics.
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Reach
Reach is a charity based in the United Kingdom that puts together the knowledge of its membership in order to provide support to families with disabilities. Many children that are a part of Reach have an arm or limb missing due to malformation or some deficiency. The membership is made up of children and adults that have a limb deficiency themselves. Reach brings together professionals and parents to share information, resources, support and guidance. The charity was established in 1978 and has since become the leading platform for children with upper limb deficiencies.
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Pnseuronet
Pnseuronet was established in 2002, when a group of international neurologists launched the support network through a grant by the European Union. The core aim of this network is to provide support to neurologists when it comes to diagnosis and classifcation of the condition, interchange of information amongst the network and to facilitate clinical trails by pooling the patients. The group extends a welcome to speciaLISTs interested in PNS.
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Centre For Fatigue Syndrome
Centre for Fatigue Syndrome cares for people that suffer from chronic fatigue syndrome. The charity was launched in November 1992, and it has since grown by receive adequate funding which helped the charity to take on staff, administrators, occupational therapists, speciaLIST support workers, consultants and volunteers. The core aim of the centre is to offer those with chronic fatigue syndrome a combination of support, help and care to the families through its multidisciplinary team.
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M&K Update Service
M&K Update Service was set up in 1992 to respond to a lack of authentic CPD. Courses are delivered by clinical experts that come with proven track records. M&K provides over 50 open courses throughout the United Kingdom, mainland Europe and Ireland. After gaining funding from the government, M&K has launched an online learning course in 2012. The customers are drawn from a wide array of settings and organizations like NHS hospitals, primary care trusts, GP surgeries and health centres.
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Autism London
Autism London supports those afflicted with autism and Asperger syndrome. Many of those afflicted with this health condition also suffer from learning disabilities. There are special autism services in areas like Sidcup, Leyton that provide residential services. The charity provides a wide range of services including, supported living, registered care, individual support, community support, day services, employment support and transition services.
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The University Of Kansas Medical Center
The University of Kansas Medical Center serves Kansas through excellence in education, research, patient care and community engagement. KU Medical Center strives to educate exceptional health care professionals through a full range of undergraduate, graduate, professional, postdoctoral and continuing education programs. KU Medical Center has a long-standing reputation for compassionate and state-of-the-art patient care in an academic medical center environment. Every day, the staff provides the highest-quality clinical treatment and care with a single purpose in mind helping the patient.
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Irlen Syndrome
Irlen Syndrome causes eye problems for many people because it alters the way they see things. These eye problems are based on their visual perception. The eyes are not the main source of the problem. The problems are caused by the way in which the brain interprets the visual information that is being sent through the eyes. Having Irlen Syndrome prevents many people from reading effectively and efficiently.
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Intellectual Disability Info
Intellectual Disability is an ideal learning resource for medical, nursing and other healthcare students. Everyone working in healthcare will find invaluable information on this site. Senior editorial team have clinical and academic experience spanning the last 30 years.
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The Hypermobility Syndrome Association
The Hypermobility Syndrome Association (HMSA) is a charity run by and for people diagnosed with the Hypermobility Syndrome (HMS). The HMSA aims to provide support and information to those affected by the Syndrome and to promote knowledge and understanding within the medical community and the public at large. The Hypermobility Syndrome Association is financed by donations and the contributions it receives from members and is staffed by volunteers.
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Hughes Syndrome Foundation
Hughes Syndrome Foundation is a UK registered charity dedicated to promoting awareness and funding research into Hughes Syndrome which is also known medically as the antiphospholipid syndrome (APS). The website provides information about the charity and all aspects of Hughes Syndrome for patients, doctors and supporters. Hughes Syndrome is an autoimmune disorder which can present many clinical features, some of which can be life threatening, including strokes and thrombosis, and it can also be the cause of recurrent miscarriage. The good news is that, once diagnosed, Hughes Syndrome is potentially treatable the bad news is that, as the condition is relatively new, it often goes undetected or misdiagnosed. With clients help help Hughes Syndrome Foundation hopes to raise the profile of Hughes Syndrome so that the organization can discover more about its causes, prevalence and treatment.
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Haematological Maligna Diagnostic Service
HMDS is a laboratory specialising in the diagnosis of haematological malignancies which includes leukaemia, lymphoma and myeloma. The laboratory provides a comprehensive diagnostic service to the Yorkshire Cancer Network and The Yorkshire Coast and the Humber Cancer Network as well as receiving referrals from across the UK. HMDS also acts as a diagnostic reference center for many national and international clinical trials.
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Hi2u
This site is designed for and by people with first hand experience of hidden impairments also known as invisible disabilities. Designed with a simple navigation facility to access a wide variety of information from many different resources. Articles from people with first hand experiences of hidden impairments, professionals and other members of society. Along with promoting skills and talents people with hidden impairments have. Providing a valuable resource for information that may be useful for any members of society.
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Health-Report
Health-Report website is dedicated to exposing the truth about the damage being done to the human immune systems and the long-term good health by man made synthetic chemicals. Chemicals which are found in virtually everything we eat and everything we use on our skin and bodies. Our toiletries and skin care products are made from a toxic mixture of unpronounceable synthetic chemical names and sold to us as skin "care" products. Household cleaning products are perhaps amongst the most toxic chemical products stored in the average house.
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Fas Family Resource Institute
FAS Family Resource Institute is a non-profit organization, is to identify, understand and care for individuals disabled by prenatal alcohol exposure and their families, and to prevent future generations from having to live with this disability. This web site is published with the hope that it will aid in the preservation of the sweet innocence in those who are affected and that their cries for understanding and help will not be ignored.
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Eurocran
Welcome to Eurocran Network-Directory of European Resoarses including Patau's Syndrome Edwards Syndrome Stickler Syndrome Crouzon Syndrome pierre robin sequence genral info andgenetic database.
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Down Syndrome
The mission of Downsyndrome.com is to make our communities more informed and accommodating. Clients can ask questions, make friends, share stories, brag. People visit every day coming together across DownSyndrome.com to explore and express their interests, share information, make friendships, and meet new people around the world.
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The Department Of Health
The Department of Health provides strategic leadership for public health, the NHS and social care in England. The Department of Healths purpose is to improve Englands health and well-being and in doing so achieve better health, better care, and better value for all. The organization is also responsible for looking after and allocating public money to the NHS and adult social care services. Furthermore, the responsibility to explain to the public how their money is being spent, and what is being achieved as a result.
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The Sutherland Society
The Sutherland Society began in 1976 as a post graduate study group for cranial osteopathy. It later expanded its aims to include the promotion of cranial osteopathy. The Society depends on its members for its activities. The society aims to provide the opportunity for shared study and mutual support, to further understanding of the work of AT Still (the founder of osteopathy) and WG Sutherland (the founder of osteopathy in the cranial field) and to promote awareness of cranial osteopathy. .
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Mental Health Foundation
Mental Health Foundation is committed to reducing the suffering caused by mental ill health and to help everyone lead mentally healthier lives. The foundation helps people to survive, recover from and prevent mental health problems. The organization does this by carrying out research,developing practical solutions for better mental health services,campaigning to reduce stigma and discrimination and promoting better mental health for all.
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Coccyx
This site is intended to provide information about coccyx pain, but the client will have to go to a doctor (usually an orthopedic speciaLIST) for advice on and treatment of hisher particular problems.It helps to understand the causes of coccyx pain, the diagnosis and treatment. Most coccyx pain is caused by the coccyx dislocating when you sit. In such cases, manual treatments, if applied by an expert, may relieve the pain. Injections of cortisone help some people. If other treatments fail, removal of the coccyx may be effective in suitable cases. This is best carried out by an surgeon who has a record of experience and success with this operation.
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Contact A Family
Contact a Family is the only national charity that exists to support the families of disabled children whatever their condition or disability. With over 30 years of experience, the vision is that families with disabled children are empowered to live the lives they want and achieve their full potential, for themselves, for the communities they live in, and for society. It's why the organization offers support, information and advice to over 340,000 families each year and campaign for families to receive a better deal.
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Bio Med Central
BioMed Central is an STM (Science, Technology and Medicine) publisher of 220 open access, online, peer-reviewed journals. The portfolio of journals spans all areas of biology and medicine and includes broad interest titles, such as BMC Biology and BMC Medicine alongside speciaLIST journals, such as Retrovirology and BMC Genomics. All original research articles published by BioMed Central are made freely and permanently accessible online immediately upon publication.
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The Brain Injury Association Of America
The Brain Injury Association of America (BIAA) is the countrys oldest and largest nationwide brain injury advocacy organization. The Brain Injury Association of America was founded by individuals who wanted to improve the quality of life for their family members and patients who had sustained brain injuries. The Association has a long and illustrious history. Their mission is to be the voice of brain injury. Through advocacy, education and research, the association brings help, hope and healing to millions of individuals living with brain injury, their families and the professionals who serve them.
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Barth Syndrome
Barth Syndrome Trust was started in November 2003 and is the leading charity for Barth syndrome in the UK. All the staff who are in the organization are volunteers. The team focuses to keep administrative and fundraising expenses to a minimum. Furthermore the organization does extensive searching for a cure for Barth syndrome.
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Asperger East Anglia
Asperger East Anglia works in many areas to help people of all ages to live their lives with as much independence as possible. Asperger East Anglia offers personal, friendly support and assistance for everyone with or suspected of having Asperger syndrome, their families and others who work with or care for them by providing a comprehensive and integrated service. Where there is a gap in provision the organization aims to work in partnership to help fill it.
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The Androgen Insensitivity Syndrome Support Group
The Androgen Insensitivity Syndrome Support Group (AISSG) is a UK-based charity which started in 1988 (formalised in 1993). The support group provides information and support to young people, adults and families affected by XY-female conditions such as complete and partial Androgen Insensitivity Syndrome or AIS (old name Testicular Feminization Syndrome or Testicular Feminisation Syndrome). The organization also supports those affected by Swyer's Syndrome (XY Gonadal Dysgenesis), 5-alpha Reductase Deficiency, Leydig Cell Hypoplasia, Mayer-Rokitansky-Kuster-Hauser (MRKH) Syndrome, Mullerian Dysgenesis, Mullerian Duct Aplasia, Vaginal Atresia, and other related conditions.
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Afme
Online Counselling. Information Publication, NHS Services-Professional Media Centre Support Groups.
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Acupuncture.Com
Acupuncture.com New provides updated articles and research about acupuncture and Traditional Chinese Medicine. Furthermore the website offers opportunities for vendors to participate with appropriate advertising banners and links. The main mission of this organization is to provide a growing and improving resource for the TCM community.
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The American Academy Of Experts In Traumatic Stres
The American Academy of Experts in Traumatic Stress is a multidisciplinary network of professionals who are committed to the advancement of intervention for survivors of trauma. The Academy in collaboration with the National Center for Crisis Management aims to identify expertise among professionals, across disciplines, and provide standards for those who provide intervention to survivors of traumatic events. Members are provided with the opportunity to apply for Diplomate and Fellowship status.
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Syndrome
Welcome to our Website. What you need when you need it. Down syndrome williams syndrome CFC syndrome proteus syndrome including, abdominal compartment syndrome.
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Gold Bamboo
GoldBamboo is a health and wellness web site where users can explore content from alternative healing disciplines (Eastern) side-by-side with information from conventional medical science (Western). The purpose of the site is to meet the growing consumer demand for combining Eastern and Western treatments into an integrated approach focused by personal choice. To meet this demand, GoldBamboo has utilized advanced search technology to develop the first Integrative Health Ontology.
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The Online Asperger Syndrome Information And Suppo
The Online Asperger Syndrome Information and Support (OASIS) center has joined with MAAP Services for Autism and Asperger Syndrome to create a single resource for families, individuals, and medical professionals who deal with the challenges of Asperger Syndrome, Autism, and Pervasive Developmental Disorder. Website visiting clients will be able to find a diagnosis, parent group, clinic, school, or therapist near to them.
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